UPC: 9780128198032 | Genomic Data Sharing: Case Studies Challenges and Opportunities for Precision Medicine (Paperback)

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UPC: 9780128198032 | Genomic Data Sharing: Case Studies  Challenges  and Opportunities for Precision Medicine (Paperback)
UPC: 9780128198032 | Genomic Data Sharing: Case Studies Challenges and Opportunities for Precision Medicine (Paperback)

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Genomic Data Sharing: Case Studies Challenges and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book international leaders in genomic data examine these issues in-depth offering practical case studies that highlight key successes challenges and opportunities. Sections discuss the eMERGE Network Undiagnosed Disease Network Vanderbilt Biobank Marshfield Clinic Biobank Minnesota Authorization Rochester Epidemiology Project NIH sponsored biobanks GINA and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines the book also provides succinct overviews of ethical legal social and IT challenges. Clinician investigators clinicians affiliated with academic medical centers policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical social and clinical landscape of genomic data sharing.

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